This page will lead you to finding some of the true survivors of the battle with GBS and CIDP.  These are the personal web pages and support groups that can go beyond the medical aspect of dealing with this area in life.  Take a glimpse at their own stories, join the listserv and take part when you need an extra hug or have one to give.   

 

  

National and International support groups..

• Australia 

• Coping with an Autoimmune Disease

• GBS/CIDP Int'l, from the United States.

• GBS International Website (multi-lingual)

• The Inflammatory Neuropathy Support Group of Victoria Inc.

• United Kingdom 

 

For Families:

• Caregiver's Handbook
• Caregivers Support
• Family Village: A Global Community of Disability-Related Resources

• The Glaxo Neurological Center 

 

The 'GBS/CIDP Unmoderated' forum...

The 'GBS/CIDP Unmoderated' forum is for patients and those close to them, with unmoderated discussion on disease development, prognosis and various treatments and off-topic chat (seeing as life goes on before, during, and after GBS and CIDP). The discussion is done through various e-mail letters received via your own mailbox throughout the day.

To subscribe/unsubscribe to GBS/CIDP Unmoderated send a BLANK e-mail to the following address, using the same address you will use for all discussion:

• Click on GBS_CIDP Subscribe to join

On-line support...

• e Groups - GBS/CIDP Discussions 
• Neurology Web Forum GBS and CIDP 

• GBS Foundation International Chat (no registration required)

• Yahoo GBS Chat (must register)

  

Personal web pages...

• Barbara Beltz has many helpful links.
• The Smith's GBS Information Collection
• Eric's CIDP Information Page
• Jeff Steinhilber's site will tell you about GBS and how to join the listserv.
• Kezzi's GBS Information site
• Laurie's Friends and Family
• Patients/Patience: A Psychologist’s Rehabilitation Memoir
• "Mummy, why don't you hug me?" [L Martin]
• "An Awakening at the Age of 28" a personal story of CIDP

This site has been created for information and support, it is by no means to be used in substitute for professional advice or reference in substitute of medical professionals.

Do you have any questions or comments you'd like to share?

Please write to us at: Email

Page maintained by Kezzi. Last updated 18 August, 2006. Copyright ©2001 Laurie Jean Miller.